Mandy’s Robotic Hysterectomy

Hi. My name is Sue. I had a davinci total hysterectomy( still have my ovaries) I am 37 years old and my procedure was done at Sisters Hospital in Buffalo NY on November 2nd 2015. I had a hysterectomy because I had been suffering with endometrosis since I was 20 yrs old. I was on birth control for many years and that seemed to have kept the endometriosis under control up until September 24th 2014. I had a blood clot in my vein on my left leg that was lodging into my deep vein. A piece broke off and went straight for my left lung. I was hospitalized for 4 days and on blood thinners for 6 months. The cause of the pulmonary embolism and DVT was because of a genetic mutation MTHFR. With that genetic mutation, I could never take birth control, estrogen, progesterone or any type of hormone ever again. So with being off of the birth control the endometriosis got worse. I was in pain almost everyday and menstruating every 13 days. It was the worst. The gyn dr I was seeing then wanted me to try Lupron which forces menopause for 6 months to make the endometriosis shrink but considering thats a hormone I couldn’t try that so my last resort was to have a hysterectomy.

I was released from the hospital the same day of my surgery. Recovery was ok after 4 weeks. I was able to go back to my normal routine after 8 weeks. On January 16th 2016 I had to rush to the emergency room because I was in the worst pain ever. Come to find out I needed to have a vaginal cuff repair because I had a tear and my intestines were starting to pop out through the opening. I was horrified. I haven’t felt good ever since, still in pain and swelling.

On Monday February 15th I’m having another surgery to find out whats going on so the surgeon wants to do a robotic assisted laporoscopic exploratory surgery. Im so tired and scared.

A part of me regrets having the surgery cause I feel like Im never gona feel normal again but theres a part of me that is glad that I had it done because I am no longer getting my period and no more endometriosis pain. Im just hoping this is my last surgery and that I can feel normal again and be able to do the things I used to do before all of ths chaos started in my life.

My advice to women that are going to have a hysterectomy is to really think about it and make sure you have tried everything possible to avoid a hysterectomy. Everybody heals differently but if you can avoid a hysterectomy then great. Only do it if its your last resort. Make sure you have someone helping you while you recover and always follow doctors orders even if you feel like you can do things wait til he/she gives you the ok to do so. I wish you all the best of luck and God bless.



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